Shared Decision Making Summit 2018

Topics at the Summit

The Summit is more discussion and brainstorming than prepared presentations.  Topics will be "teed up" by presenters, and attendees will have the liberty to take the discussion where it would be most fruitful.

Accordingly, the Steering Committee has identified the topics below, more as an aid to identify who should attend, than as rigid discussion guardrails.  In fact, we are seeking your ideas and input to help shape a more detailed description of the topics, which will be available closer to the date of the Summit.

SDM Pillars

These topics will be discussed in whole-group sessions, with all participants involved in the same topic.

• Patients - how can we create and support a cultural shift towards people expecting, asking, and being prepared for participating in shared decision making style conversations with their healthcare providers?
• Providers - how do we help shift the mindset of providers everywhere to recognize that only by helping to integrate the values and preferences of a patient with  medical and scientific details can the best path for an individual be selected?
• Data/Evidence - how can we facilitate the right evidence being available at the right time, in the right way, so that patients and their providers can make the best decision?

SDM Contexts

These topics will be discussed in concurrent sessions, with participants selecting between 2 or 3 topics occurring at one time.

• Adherence - how might shared decision making help people follow through with their selected treatment path (medication, nutrition, therapy, lifestyle, etc)?
• Diversity - with its focus on eliciting and integrating patient values and preferences, how could SDM help minority populations to receive better healthcare, participate in clinical trials, etc?
• Aging Populations - how might shared decision making help patients, caregivers, and providers make , potentially pre-thinking key decisions prior to 
• Clinical Research - can SDM be applied in conversations that consider clinical trials as potential options, enriching the patient and provider experience, while increasing clinical research awareness and participation?
• Clinical Trial Registries - how can clinical trial registries be designed based on the values and preferences of patients and caregivers, supporting a more robust shared decision making style of conversation with their providers?  
• Diabetes Care - how might shared decision making improve care and outcomes for people with diabetes, and how can we demonstrate these benefits?
• Cardiovascular Care - what would it look like if SDM was broadly implemented within cardiovascular care, and what would it take to get there? 

Help Shape the Topics

The high-level topics listed above will be more fully fleshed out prior to the Summit.  Please submit your ideas about what direction these topics should take.  You may submit multiple times.  The deadline for submissions is 23 Nov 2017.

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Please Select Topic
Please indicate which topic described above your ideas below are related to. Please submit your ideas and feedback one topic at a time. You can submit as many times as you like.

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Topic  *

Please Choose Pillar - Patients Pillar - Providers Pillar - Data Context - Adherence Context - Diversity Context - Aging Populations Context - Clinical Research Context - Clinical Trial Registries Context - Diabetes Care Context - Cardiovascular Care New Topic Suggestion

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Current State of Topic
Please specify 3-5 statements of generally accepted facts that answer "What?" and "So what?" What is the current state of affairs? What is the problem? Why is it important? What is the value of solving it?

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Questions to be Discussed
Please include 3-5 questions that suggest ideas, possibilities, and solutions that might work. The intent is to provide an idea of where the conversation might go in answering the question of "Now What?” While the statements in the context area above should be generally accepted, the questions can contain more untested and even provocative thoughts. They are questions, so people don’t have to agree; they can come and support, build on, or suggest something different.

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Practical Examples
Please list practical, implementation-oriented examples aligned with the topic. These can include work you are involved in, familiar with, or simply aware of. They could be collaborations spawned by the previous SDM Summit, or from like-minded orgs trying to do a similar thing (who will hopefully come share their experience and join our community). Please include names of organizations and infividuals as avaialble and appropriate.

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